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Patient Work Projects

Current projects

Patient Work Stories Archive

The TT is currently refining a Canvas shell that outlines how to conduct qualitative interviews with individuals who are experiencing patient work. One avenue for these interviews is to create a follow-on Digital Storytelling project on Patient Work.

Current projects: 

  • Project on HIV Patient Work by Undergraduate Kelsey Helland  for an independent study
  • Project on Multiple Sclerosis patient work by Barrett Honors student Natalie Fox 
  • Project on Type-I Diabetes patient work by Barrett Honors student Jazmin Rocha
  • Additional student projects forthcoming as we expound the Canvas shell!

Students have the option to earn Experiential Learning credit and are mentored by Translational Team faculty.

Over time, we will create a rich digital archive of patient work stories.

Project Leads: Elizabeth Kizer, Samantha Whitman and Katie Pine

Funding Status: seeking funding

Native Health Helping Hands project

In the first year (2021-2022), four undergraduate students and one graduate student completed their two-semester internship/capstone projects.

In the 2022-2023 academic year nine undergraduate students and two graduate students are anticipated to complete their internship/capstone projects with Helping Hands.  

In 2022 we expanded the program from only serving the Phoenix location to a secondary point of service at the Mesa location.  

Additionally, in 2022 we applied, and were granted, an ASU Knowledge Exchange for Resilience (KER) fellowship which will build upon the services offered by the Helping Hands program. The goal of the fellowship is to work towards the development of a dashboard displaying the availability of beds for homeless individuals & families. This project was proposed in  response to a pressing need Helping Hands interns identified during the first year of the program. The KER fellowship began in January of 2023.

Project Lead: Elizabeth Kizer
 

Navigating The Diagnostic Quest: The Patient Work Of Endometriosis

This project is using qualitative methods (narrative interviews) investigating the patient work of those seeking a formalized medical diagnosis for Endometriosis. This work will be used for broader research that will deepen the empirical knowledge that can be used to develop health care and health IT interventions that will accelerate the time to diagnosis for endometriosis.

Project Lead: Samantha Whitman

Funding: Discretionary funds
 

Student involvement

Students can participate in research related to health services and science and technology.     
Students will gain experience in project management, research and data analytics while learning ways to engage the community and helping the team build itself. 

The projects students can work on:

  • Narratives of Patient Work Experiential Learning
  • Native Health Helping Hands project]
  • Navigating The Diagnostic Quest: The Patient Work Of Endometriosis Sufferers Research Project
     

Community partners

Honor Health
A large healthcare system in Central Arizona considered a leader in patient-centered care.

LaborTech Research Network
A nonprofit organization with a strong interest in studying invisible labor of patients

Native Health
Federally Qualified Health Center & Urban Indian Health Center