Department of Biomedical Informatics

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National Alzheimer's Coordinating Core Center

Research Topic: 
Graciela Gonzalez

The National Alzheimer's Coordinating Center (NACC), located at the University of Washington, has been funded through a Cooperative Agreement with the National Institute on Aging since 1999. NACC collects and stores research data from Alzheimer's Disease Centers (ADCs) as mandated by NIA. The terms and conditions of NIA awards to the individual ADCs specify that they are required to submit designated limited research data to NACC for inclusion in the database. These data consist of, but are not limited to, a Minimum Data Set, an expanded Uniform Data Set, neuropathologic data, ancillary survey data and metadata describing individual ADC characteristics (no subject names, addresses, etc. are included). These data form the basic level of participation required at all NIA-funded ADCs. To partially defray costs associated with participation in this data-sharing effort, NACC has provided partial funding to each ADC to support the data management role.